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Precision in Zellweger’s Syndrome
Zellweger’s Syndrome Disorder is a complex disease of deficiencies. DHA deficiency occurs in most children diagnosed with Zellweger’s Syndrome (a Peroxisomal Biogenesis Disorder). Correction of this one deficiency proves to be a measure to help our children live as best as they...
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Precision in Zellweger’s Syndrome
Zellweger’s Syndrome Disorder is a complex disease of deficiencies. DHA deficiency occurs in most children diagnosed with Zellweger’s Syndrome (a Peroxisomal Biogenesis Disorder). Correction of this one deficiency proves to be a measure to help our children live as best as they can under its crippling burden while further research is pursued. DHA-EE (docosahexanoic acid-ethyl ester) sourced from small-body, cold-water fish has made a profound impact on our children’s biochemical performance and ability to live life to their fullest (See Research and Summary Questions).
The most impacted of all organs is the liver, influencing a cascade of problems spanning into every system, for the hepatobiliary deficiencies are at the root of most all other deficiencies. Along side of DHA-EE, correcting the poor bile acid flow ameliorates many problems (See Cholic Acid Research).
How can parents support their children with Zellweger’s?
Discover many tips on the Zellweger Spectrum Disorder Information page.
Sustaining the website’s intent, the research of the late Dra. Manuela Martinez safeguards that which we live day by day with our children, and the space serves to honor Dra. Martinez for her sacrifices and dedication given on behalf of her young patients. The Manuela Martinez Foundation, research still “ahead of its time,” is included. Who was Dra. Manuela Martinez?
Zellwegerstory.org
Exemplifies children with Zellweger’s Syndrome supported by DHA-EE (docosahexaenoic acid ethyl-ester), cholic acid, and other insufficiency corrections which profoundly impact biochemical performance.
Offers a ray of hope to parents of children born on the spectrum of Zellweger’s Syndrome by sharing first-hand knowledge and experience.
Fosters research which addresses the immediate deficiencies of ZSD and supports personalized medicine based on each child’s genetic and epigenetic profile.
Our Families
The families of Zellweger’s…Writing a Different Story shared their children’s case histories, their successes, and even their insights in treatment.
Some have reflected on their children’s lives and the impact they have had on others around them. Some have related their child’s life story in a blog.
Some have communicated their faith. And some have made known their sorrow and grief. But all have shared their enthusiasm, their fervent desire to assist the next generation.
Your Gifts
How your gifts help:
- Supports ongoing DHA-EE research in children with ZSD and other disorders
covers shipping costs and product development
Research and Wellness Database development
Services of Empowering Hands for Life
To contribute click here, or click donate below.